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Intellectual Disability References

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This reference list contains articles that have been authored by intellectual disability nurses in Australia, New Zealand and our colleagues in the UK. It is not complete, so if you have further references to add please send to me at president@pandda.net


AUSTRALIAN REFERENCES

Ashton, G. A. (1979). "The faces of a mental retardation nurse." The Australian Nursing Journal 9(2): 44-46.

Atkins, C. (1998). Just little things: Nurses' perceptions of quality of life for people with severe multiple impairments. Unpublished PhD thesis. Sydney: University of Sydney. [Available: http://ses.library.usyd.edu.au/handle/2123/395].

Atkins, C. (1995). Severe physical impairment associated with developmental disability. Issues in Australian Nursing 5: the nurse as a clinician. G. Gray, R. Pratt & A. McMurray. Melbourne, Churchill Livingstone.

Buzio, A., J. Morgan, et al. (2002). "The experiences of adults with cerebral during periods of hospitalization." Australian Journal of Advanced Nursing 19(4): 8-14.

Cloonan, N. & Savage, I. (2005). Intellectual disabilities. In Psychiatric and mental health nursing. Sydney: Elsevier.

Davis, R., Phillips, A., & Nankervis, K. (2002). Service delivery to people with an intellectual disability in Victoria and Australia. A report to the Scottish National Review of the contribution of nurses to the care and support of people with a learning disability Retrieved 19 June 2007, from http://www.ccldnn.org./Downloads/Australian%20Report-final. (PDF)

Donley, M., Chan, J., & Webber, L. (2012). Disability support workers' knowledge and education needs about psychotropic medication. British Journal of Learning Disabilities, 40(4), 286-291.

Evans, J., & Gallagher, S. (2008). Developmental and intellectual disability. In E. Chang & A. Johnson (Eds.), Chronic illness & disability. Sydney: Churchill Livingstone/Elsevier.

Goddard, L., S. Mackey, et al. (2010). "Functional clinical placements: A driver for change." Nurse Education Today 30: 398-404.

Goddard, L., P. Davidson, et al. (2008). "People with an intellectual disability in the discourse of chronic and complex conditions: an invisible group?" Australian Health Review 32(3): 405-414.

Goddard, L. & S. Mackey (2005). A Health Mentoring Project. Early Edition, Magazine of Early Childhood Intervention Australia (NSW Chapter), 12.

Hemsley, B., Balandin, S., Sigafoos, J., Green, V., Forbes, R., Taylor, C., & Parmenter, T. (2001). Communication experiences of nurses and individuals who have severe communication impairment. Paper presented at the 2001 Speech Pathology Australia National.

Jennings, A. N. (1973). "Nursing retarded children in Marsden Hospital." The Lamp: 29-32.

Kearney, P. M., Pryor, J. & Lever, S. (2012). Theories, models and frameworks for chronic illness, disability, adaptation and coping. In K. L. Mauk (Ed), Rehabilitation nursing: a contemporary approach to practice (pp.28-50). Sudbury MA: Jones & Bartlett Learning.

Kearney, P.M. & Lever, S. (2010) Editorial. Rehabilitation nursing: invisible and underappreciated therapy. International Journal of Therapy and Rehabilitation, 17(8), 394-395.

Kearney, P. M. (2009). Reconfiguring the future: stories of post-stroke transition. Unpublished PhD thesis. Adelaide: University of South Australia. [Available: http://ukpmc.ac.uk/theses/ETH/192 ]

Kearney, P. M. (2006). Commentary. Exploring social and leisure participation among stroke survivors: part two. International Journal of Therapy and Rehabilitation, 13(5), 207.

Kearney, P. M. (2005). The ICF and nursing: emphasising the social. JARNA Journal of the Australasian Rehabilitation Nurses Association. 8(1), 9-16.

Kearney, P. & J. Pryor (2004). "The International Classification of Functioning, Disability and Health (ICF) and nursing." Journal of Advanced Nursing 46(2): 162-170.

Kearney, P. M. & T. Griffin (2001). "Between joy and sorrow: being a parent of a child with developmental disability." Journal of Advanced Nursing 34(5): 582-592.

Kearney, P. M. (1999) Connecting the personal with the professional. Disability Studies Quarterly, 19(4), 337-344.

Kearney, P.M. (1996). Between joy and sorrow: being a parent of a child with developmental disability. Unpublished Masters thesis. Sydney: University of Western Sydney Nepean. [Available: http://handle.uws.edu.au:8081/1959.7/793]

Koch, T., Marks, J., & Tooke, E. (2001). Evaluating a community nursing service: listening to the voices of clients with an intellectual disability and/or their proxies. Journal of Clinical Nursing, 10(3), 352.

Mackey, S. & L. D. Goddard (2006). "The experience of health and wellness in mothers of young children with intellectual disabilities." Journal of Intellectual Disability 10(4): 305-315.

Nankervis, K., Rosewarne, A., & Vassos, M. (2011). Why do families relinquish care? An investigation of the factors that lead to relinquishment into out-of-home respite care. Journal of Intellectual Disability Research, 55(4), 422-433. doi: 10.1111/j.1365-2788.2011.01389.x

Nankervis, K. L., Rosewarne, A. C., & Vassos, M. V. (2011). Respite and Parental Relinquishment of Care: A Comprehensive Review of the Available Literature. Journal of Policy & Practice in Intellectual Disabilities, 8(3), 150-162.

Osborn, I. (1980). Consistency: the key to better nursing for the disabled. The Lamp. June 1980.

Raven, M. (1988). "Application of Oren's self-care model to nursing practice in developmental disability." The Australian Journal of Advanced Nursing 6(2): 16-23.

Mohr, C., Phillips, A., Curran, J., & Rymill, A. (2002). Interagency training in dual disability. Australasian Psychiatry, 10(4), 356-364.

Phillips, A., Morrison, J., & Davis, R. W. (2004). General practitioners' educational needs in intellectual disability health. Journal of Intellectual Disability Health, 48(2), 142-149.

Wilson, N. J., T. R. Parmenter, et al. (2010). "A masculine perspective of gendered topics in the research literature on males and females with intellectual disability." Journal of Intellectual & Developmental Disability 35(1): 1-8.


NEW ZEALAND REFERENCES

Burrell, B., & Trip, H. (2011). Reform and community care: has de-institutionalisation delivered for people with intellectual disability? Nursing Inquiry, 18(2), 174-183. doi: 10.1111/j.1440-1800.2011.00522.

Hale, L. A., Trip, H. T., Whitehead, L., & Conder, J. (2011). Self-Management Abilities of Diabetes in People With an Intellectual Disability Living in New Zealand. Journal of Policy and Practice in Intellectual Disabilities, 8(4), 223-230. doi: 10.1111/j.1741-1130.2011.00314.

Taua, C., Hepworth, J., & Neville, C. (2012). Nurses' role in caring for people with a comorbidity of mental illness and intellectual disability: A literature review. International Journal of Mental Health Nursing, 21(2), 163-174. doi: 10.1111/j.1447-0349.2011.00779.

Taua, C., & Farrow, T. (2009). Negotiating complexities: An ethnographic study of intellectual disability and mental health nursing in New Zealand. International Journal of Mental Health Nursing, 18, 274-284.


UNITED KINGDOM REFERENCES

Barr, O. (2009). Learning disability nurse education. Journal of Intellectual Disabilities, 13(3), 179-182. doi: 10.1177/1744629509349637.

Brown, M., MacArthur, J., McKechanie, A., Hayes, M., & Fletcher, J. (2010). Equality and access to general health care for people with learning disabilities: reality or rhetoric? Journal of Research in Nursing, 15(4), 351-361. doi: 10.1177/1744987110370019.

Doody, O., Slevin, E., & Taggart, L. (2012). Intellectual disability nursing in Ireland: Identifying its development and future. Journal of Intellectual Disabilities, 16(1), 7-16. doi: 10.1177/1744629512437091 Ireland.

Doody, O., McInerney, P., & Linnane, L. (2012). Intellectual disability nursing assessment: student reflections. British Journal of Nursing (BJN), 21(6), 345-348.

Doody, O., & Doody, C. M. (2012). Intellectual disability nursing and transcultural care. British Journal of Nursing (BJN), 21(3), 174-180.

Doody, C. M., Markey, K., & Doody, O. (2013). The experiences of registered intellectual disability nurses caring for the older person with intellectual disability. Journal of Clinical Nursing, 22(3), 1112–1112.

Gates, B. (2012). Plus ça change, plus c’est la même chose: Reflection on access to health care in mainstream services by people with intellectual disabilities in England. Journal of Intellectual Disabilities, 16(1), 3-6. doi: 10.1177/1744629512441741.

Horan, P., & Brown, M. (2009). An international evaluation of networks and networking in learning disability nursing. Learning Disability Practice, 12(8), 32-37.

Llewellyn, P., & Northway, R. (2007). An investigation into the advocacy role of the learning disability nurse. Journal of Research in Nursing, 12(2), 147-161. doi: 10.1177/1744987106075626 United Kingdom.

Llewellyn, P., & Northway, R. (2007). The views and experiences of learning disability nurses concerning their advocacy education. Nurse Education Today, 27, 955-963.

McIlfatrick, S., Taggart, L., & Truesdale-Kennedy, M. (2011). Supporting women with intellectual disabilities to access breast cancer screening: a healthcare professional perspective. European Journal of Cancer Care, 20(3), 412-420. doi: 10.1111/j.1365-2354.2010.01221.United Kingdom.

Moulster, G., Ames, S., & Griffiths, T. (2012). A new learning disability nursing framework. Learning Disability Practice, 15(6), 14-18.

Taggart, L., Truesdale-Kennedy, M., & McIlfatrick, S. (2011). The role of community nurses and residential staff in supporting women with intellectual disability to access breast screening services. Journal of Intellectual Disability Research, 55(1), 41-52. doi: 10.1111/j.1365-2788.2010.01345.

Taggart, L., & McKendry, L. (2009). Developing a mental health promotion booklet for young people with learning disabilities. Learning Disability Practice, 12(10), 27-32. United Kingdom.

Taggart, L., McMillan, R., & Lawson, A. (2008). Women with and without intellectual disability and psychiatric disorders: An examination of the literature. Journal of Intellectual Disabilities, 12(3), 191-211. United Kingdom.





Reports & Articles


REPORTS


AIHW. (2011). Aboriginal and Torres Strait Islander People with disability: wellbeing, participation and support. Canberra: AIHW. http://www.aihw.gov.au/indigenous-observatory-disability


Department of Health. (2013). Six Lives: Progress Report on Healthcare for People with Learning Disabilities. London: Department of Health.


Royal College of Nursing. (2013). Meeting the health needs of people with learning disabilities. London: RCN. http://www.rcn.org.uk/__data/assets/pdf_file/0006/78765/003184.pdf


ARTICLES


Doan, T., Ware, R., McPherson, L., van Dooren, K., Bain, C., Carrington, S., Lennox, N. (2013). Psychotropic medication use in adolescents with intellectual disability living in the community. Pharmacoepidemiology and Drug Safety, n/a-n/a. doi: 10.1002/pds.3484


Dodevska, G. A., & Vassos, M. V. (2013). What qualities are valued in residential direct care workers from the perspective of people with an intellectual disability and managers of accommodation services? Journal of Intellectual Disability Research, 57(7), 601-615. doi: 10.1111/j.1365-2788.2012.01565.x


Dyke, P., Bourke, J., Llewellyn, G., & Leonard, H. (2013). The experiences of mothers of young adults with an intellectual disability transitioning from secondary school to adult life. Journal of Intellectual & Developmental Disability, 38(2), 149-162.


Jahoda, A., & Pownall, J. (2013). Sexual understanding, sources of information and social networks; the reports of young people with intellectual disabilities and their non-disabled peers. Journal of Intellectual Disability Research, n/a-n/a. doi: 10.1111/jir.12040


Jensen, K., Taylor, L., & Davis, M. T. (2013). Primary care for adults with Down syndrome: Adherence to preventative healthcare recommendations. Journal of Intellectual Disability Research, 57(5), 409-421.


Krahn, G. L., & Fox, M. H. (2013). Health Disparities of Adults with Intellectual Disabilities: What Do We Know? What Do We Do? Journal of Applied Research in Intellectual Disabilities, n/a-n/a. doi: 10.1111/jar.12067


Lancioni, G. E., O'Reilly, M. F., Singh, N. N., Sigafoos, J., Green, V. A., Oliva, D., Carrella, L. (2013). Two women with multiple disabilities communicate with distant partners via a special text messaging system. Research in Developmental Disabilities, 34(1), 397-403.


Llewellyn, G. (2013). Parents With Intellectual Disability and Their Children: Advances in Policy and Practice. Journal of Policy and Practice in Intellectual Disabilities, 10(2), 82-85. doi: 10.1111/jppi.12033


Mansell, J., Beadle-Brown, J., & Bigby, C. (2013). Implementation of active support in Victoria, Australia: an exploratory study. Journal of Intellectual & Developmental Disability, 38(1), 48-58.


McConachie, H., McLaughlin, E., Grahame, V., Taylor, H., Honey, E., Tavernor, L., .Le Couteur, A. (2013). Group therapy for anxiety in children with autism spectrum disorder. Autism. doi: 10.1177/1362361313488839


Nicoll, M., Beail, N., & Saxon, D. (2013). Cognitive behavioural treatment for anger in adults with intellectual disabilities: a systematic review and meta-analysis. Journal of Applied Research in Intellectual Disabilities, 26(1), 47-62.


Read, S. (2013). Palliative care for people with intellectual disabilities: pitfalls and potential. Palliative Medicine, 27(1), 3-4.


Read, S., Nte, S., Corcoran, P., & Stephens, R. (2013). Using Action Research to Design Bereavement Software: Engaging People with Intellectual Disabilities for Effective Development. Journal of Applied Research in Intellectual Disabilities, 26(3), 195-206. doi: 10.1111/j.1468-3148.2012.00686.x


Read, S., & Rushton, A. (2013). Cultivating understanding of health issues for adults with intellectual disability. Nurse Education Today, 33(9), 1020-1025.


Roberts, A., Townsend, S., Morris, J., Rushbrooke, E., Greenhill, B., Whitehead, R., Golding, L. (2013). Treat me right, treat me equal: using national policy and legislation to create positive changes in local health services for people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 26(1), 14-25.


Spanos, D., Hankey, C. R., Boyle, S., Koshy, P., Macmillan, S., Matthews, L., Melville, C. A. (2013). Carers' perspectives of a weight loss intervention for adults with intellectual disabilities and obesity: a qualitative study. Journal of Intellectual Disability Research, 57(1), 90-102.


Steiner, A., Goldsmith, T., Snow, A., & Chawarska, K. (2013). Practitioner’s Guide to Assessment of Autism Spectrum Disorders in Infants and Toddlers. Journal of Autism and Developmental Disorders, 42, 1183-1196.


Swaine, J. G., Parish, S. L., Luken, K., Son, E., & Dickens, P. (2013). Test of an intervention to improve knowledge of women with intellectual disabilities about cervical and breast cancer screening. Journal of Intellectual Disability Research, n/a-n/a. doi: 10.1111/jir.12062


Todd, S. (2013). ‘Being there’: the Experiences of Staff in Dealing with Matters of Dying and Death in Services for People with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities, 26(3), 215-230. doi: 10.1111/jar.12024


Tuffrey-Wijne, I., Giatras, N., Butler, G., Cresswell, A., Manners, P., & Bernal, J. (2013). Developing guidelines for disclosure or non-disclosure of bad news around life-limiting illness and death to people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 26(3), 231-242. doi: 10.1111/jar.12026


Widmer, E. D., Kempf, N., Sapin, M., & Galli-Carminati, G. (2013). Family beyond parents? An exploration of family configurations and psychological adjustment in young adults with intellectual disabilities. Research in Developmental Disabilities, 34(1), 207-217.


Woodman, A. C., & Hauser-Cram, P. (2013). The role of coping strategies in predicting change in parenting efficacy and depressive symptoms among mothers of adolescents with developmental disabilities. Journal of Intellectual Disability Research, 57(6), 513-530. doi: 10.1111/j.1365-2788.2012.01555.x


Woods, A. G., Mahdavi, E., & Ryan, J. P. (2013). Treating clients with Asperger's syndrome and autism. Child & Adolescent Psychiatry & Mental Health, 7(1), 1-8. doi: 10.1186/1753-2000-7-32


World Health Organisation. (2013). Research for universal health coverage: World health report 2013. Geneva: World Health Organisation.


Zakrajsek, A. G., Hammel, J., & Scazzero, J. A. (2013). Supporting People with Intellectual and Developmental Disabilities to Participate in their Communities through Support Staff Pilot Intervention. JOurnal of Applied Research in Intellectual Disabilities, n/a-n/a. doi: 10.1111/jar.12060